SoylentNews is people
SoylentNews
Wondering if anyone else here on SN has dealt with a kid needing surgery for Sagittal Synostosis/Craniosynostosis. One of my kids got referred to Doernbecher in Portland because he most likely has the condition and it will most likely require surgery. Evidently it is a lot more common than I realized, from the wiki:
It is estimated that craniosynostosis affects 1 in 1,800 to 3,000 live births worldwide.[3] 3 out of every 4 cases affect males. Sagittal synostosis is the most common phenotype, representing 40% to 55% of nonsyndromic cases,[3] whilst coronal synostosis represents between 20% to 25% of cases.
Has anyone else gone through this? Is there anything you would have done differently, any questions you didn't ask that would have made things go easier? etc. General advice. Normally I wouldn't ask about this kind of thing except for how it is apparently pretty common.
More from the wiki,
Craniosynostosis (from cranio, cranium; + syn, together; + ostosis relating to bone), sometimes called craniostenosis,[1] is a condition in which one or more of the fibrous sutures in an infant (very young) skull prematurely fuses by turning into bone (ossification),[2] thereby changing the growth pattern of the skull.[3] Because the skull cannot expand perpendicular to the fused suture, it compensates by growing more in the direction parallel to the closed sutures.[3] Sometimes the resulting growth pattern provides the necessary space for the growing brain, but results in an abnormal head shape and abnormal facial features.[3] In cases in which the compensation does not effectively provide enough space for the growing brain, craniosynostosis results in increased intracranial pressure leading possibly to visual impairment, sleeping impairment, eating difficulties, or an impairment of mental development combined with a significant reduction in IQ.
(Score: 1, Troll) by Azuma Hazuki on Friday October 26 2018, @03:05AM (8 children)
I am not tolerant of people who don't deserve it, and actually not all that "left" on some issues either. Don't make me trot out Popper's Paradox of Tolerance again, damn it all. This goes well beyond simple politics. All the smug veneer of outward civility you project can't hide your stenching interior from anyone who's got eyes to see it. You sit and tremble over your own child, while supporting a President who cages other peoples'. You can go to Hell.
I am "that girl" your mother warned you about...
(Score: 2, Insightful) by Anonymous Coward on Friday October 26 2018, @10:18AM (7 children)
If your position is that everyone in the Americas should be eligible for US citizenship and that US citizens are somehow responsible; then it could only make sense to annex the remainder of the continents. Is that what you want or are immigrant children simply a political prop for you?
(Score: 2) by Azuma Hazuki on Saturday October 27 2018, @12:18AM (5 children)
Er, no? What I do want, however, is for the Bill of Rights to be applied as it says it should, that is, to *everyone* within the borders of the USA. A disturbing number of people think they don't apply to non-citizens. I also want Sulla to pull his head out of his ass while there's still time, as I don't think he's irretrievably far gone yet, unlike some on this site. He needs a sharp kick in the ass, though, and if hitting him in the kids like that does it, then so be it.
I am "that girl" your mother warned you about...
(Score: 0, Troll) by Sulla on Saturday October 27 2018, @01:28AM (3 children)
You brought up two points over the past several posts that need to be addressed separately. Complaining my lack of supporting some sort of government funded healthcare and accusing me of wanting children in cages.
healthcare
The Affordable Care Act took hurt people in the state of Oregon. I was fine paying taxes for the system that existed because it appeared to work. Now after the ACA its harder for people who are poor to access healthcare, prior to the ACA in Oregon you could get covered by OHP for $0/month if you made ~40k/yr or less. There is no longer a "free" option, and for a single person (not a family) even the cheapest plans run 60-120/month for coverage that is worse than OHP. For people who already had healthcare through an employer have had their plans cut or have had their plans increase by 40-200% depending on provider. This was 100% the Democrats doing because they passed the bill without needing any republican support. They could have done anything they wanted, and what they wanted was a handout to the insurance companies.
Children in Cages
The purpose of separating kids from their parents when they came across the border started back in the 90s under Clinton because they found that measurable number of kids were being brought across the border by people who were not their parents, in come cases abandoned in the desert after the "parents" got through, or so into sex slavery. Our options were to allow a percentage of kids to be raped/killed/sold or to separate them for a period of time in which to insure that the people they were with did not mean them harm. This practice started under Clinton, continued under Bush, continued under Obama, and then under Trump apparently suddenly became inhumane so he had to change how things were done so kids didn't get so traumatized. Those two options still remain, unless as said above we just annex both continents or we allow anyone in who wants in which is pretty much the same thing. Whats your choice?
Ceterum censeo Sinae esse delendam
(Score: 3, Touché) by Azuma Hazuki on Saturday October 27 2018, @02:03AM (2 children)
You act like I don't know any of these things, and you're also deliberately not engaging with the issues here. I'll tackle both of these separately:
Regarding healthcare, I am speaking of the future, not the past. You are rather blinkered, and living in Oregon, you don't recognize how good you had it even pre-"Obama"care. That was not the case in many other parts of the country. Should things have gotten worse? No, and I don't and didn't uncritically support it either. Did you notice the scare quotes around "Obama" in there? That's because the notion of the individual madate is actually ROMNEYcare. As in, Mitt Romney. As in, "Obama"care is a Republican idea, so it's no surprise it ends up hurting people who had better already. It pissed me right the fuck off when Obama supported it, as I was hoping he'd do what all civilized nations do and implement a singlepayer system.
You are missing the forest for the small patch of very unusually healthy trees you grew up surrounded by. If all this was going down in Mississippi rather than Oregon, you would be singing a different tune, my friend. A funeral dirge. As things stand, your comfort--from a very liberal envionment, thank you--allows you the ease and privilege to stand up and bite the hand that fed you.
Regarding separating kids from adults: of course some of them were going to be exploitation victims. The solution is not "cage them all and let Cthulhu sort them out." You're committing the fallacy of the false dichotomy here. My point is that the entire process from start to finish is fucked up and has BEEN fucked up since, as you correctly point out, the Clinton years. There is, and I am understating this mightily, room for improvement.
I don't think you're as far gone as some people like Uzzard or Runaway, or Madokami forbid, Entropy, Reziac, or NPC-$BIGNUM. I think you still have some humanity left in you. But you're also inexcusably ignorant, and that's going to cost you more and more over time. Keep supporting Trump, and one day, you WILL watch your child die in front of you if his cronies get what they want and the kid gets sick again.
And you will deserve it.
I am "that girl" your mother warned you about...
(Score: -1, Troll) by Anonymous Coward on Saturday October 27 2018, @02:55AM
I did Madokami, and she's a worse piece of ass than you are.
(Score: 0) by NPC-131072 on Saturday October 27 2018, @01:20PM
Hello fren, NPC-131073 is a russian bot and the trumptards here keep modding my comments as spam.
(Score: 1, Troll) by Runaway1956 on Saturday October 27 2018, @02:52AM
You err, along with much of the world.
I bolded the portion that far to many people skim over, without reading, and certainly without understanding.
Every time a Mexican citizen gets into trouble in Texas, Mexico wants to appoint counsel, and negotiate the death penalty off the table. Every single time, Mexico gets involved in the trial, at all phases. Mexico insists that Texas has no jurisdiction over their citizens, and that Texas may not put a Mexican citizen to death.
Take the average Texas citizen, who commits a crime. If that crime is a capital crime, he faces capital punishment. If convicted, and if sentenced to death, there are no foreign powers getting involved in the process.
The US does not recognize dual citizenship. Many countries don't recognize dual citizenship. It's a simple concept: no one but the individual holding dual citizenship knows for sure where his loyalties really lie. Sometimes, that individual doesn't even know.
Outsiders do NOT enjoy all of the rights of a US citizen. They CAN enjoy all of our rights - IF they come here legally, and then get naturalized.
It's past time that we all understood exactly what citizenship means, and value our citizenship. Stop degrading that citizenship.
Abortion is the number one killed of children in the United States.
(Score: 2, Insightful) by Runaway1956 on Saturday October 27 2018, @03:19AM
Political prop, definitely. The party scours the world for fringe cases that can be spun to make Gubbermint look bad. Then, they promise to "solve" all the problems of those fringe cases - if only they can get the POWER!! So, please vote!
Abortion is the number one killed of children in the United States.