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Journal by Gaaark

My wife's white cell count has stopped doubling (she thought it was going to be at 60 from 30, but it's only at 45.... So, good news in a way...the next test in 3 months should show better? the progress.

Here's hoping it levels out and just becomes chronic and steady.
Fingers crossed.

 

Reply to: Been There

    (Score: 2, Informative) by Rupert Pupnick on Tuesday May 21 2019, @12:26PM

    by Rupert Pupnick (7277) on Tuesday May 21 2019, @12:26PM (#845780)

    Best wishes for a positive outcome for your wife. As someone treated and fully recovered from the same family of diseases, I can tell you there’s plenty of hope.

    Some advice: don’t look to online sources to try and predict outcomes. The subject is WAY too complicated for anyone without training (even for the first line caregivers who work directly for oncologists), and the information is frequently out of date because advances are being made so rapidly. Because of this, self-directed online research will like result in needless and unhelpful pessimism.

    Have you seen a hematologist? Have they tested and classified the mutation? They were able to classify my illness down to two levels of hierarchy within CLL, and their prediction of the development timeline was pretty much on the money.

    Last piece of advice: Make sure your wife complains about any new symptoms. Again, don’t look stuff up, just report any unusual symptoms to your doctor, even if they seem unrelated to your wife’s condition.

    Good luck!

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