Stories
Slash Boxes
Comments

SoylentNews is people

Submission Preview

Link to Story

Genetic Tests and Patient Access to Medical Records

Accepted submission by Anonymous Coward at 2016-05-30 02:20:35
News

Genetic-testing firm Myriad Genetics is facing a legal challenge from people who say the company refused to give them access to their own genomic data, in violation of a US government rule on medical records.

[...] The patients, who are represented by the American Civil Liberties Union (ACLU), filed the complaint on 19 May with the US government alleging that Myriad, of Salt Lake City, Utah, had declined to release complete results of tests for the genes BRCA1 and BRCA2. Some variants of these genes are linked to higher risk of cancer; for others, the link to disease is unclear or the variants are considered to be harmless.

You may remember Myriad's involvement in the SCOTUS case on patenting human genes.

http://www.nature.com/news/myriad-genetics-embroiled-in-breast-cancer-data-fight-again-1.19953 [nature.com]


Original Submission